There for kids facing medical challenges

Community PedsCare is one of just a few community pediatric programs in the country offering both palliative and hospice care. It is a program of Community Hospice & Palliative Care in collaboration with Wolfson Children’s Hospital, Nemours Children’s Specialty Care and the University of Florida – Jacksonville. Working closely with the family and the child’s primary care providers, Community PedsCare offers clinical, social service, spiritual, child life, medical and volunteer support to improve quality of life.

How Community PedsCare Helps

Community PedsCare brings comfort and care to enhance quality of life for patients from prenatal (before birth) to age 21. The program supports the specialized needs and medical care of the child, their parents and siblings, other family members, caregivers, classmates and teachers.

Counseling and spiritual support help parents and siblings deal with the strain, facilitate legacy-building and can help parents to secure resources.

With our unique combination of expressive care therapies including music and pet therapy, as well as the intervention of a dedicated child life specialist, our total family-centered care allows us to embrace and focus on the special needs of each child.

The nurses, nurse practitioner and pediatrician act as a bridge with the medical community, coordinating with the child’s doctors and others involved in the child’s care.

Grief and bereavement counseling, parent support groups and respite care offer additional help to families.

 

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Frequently Asked Questions

  • What is pediatric palliative care versus hospice care?

    Palliative care seeks to prevent or relieve physical and emotional distress of a serious illness, with the goal of improving quality of life while still seeking curative treatments. Palliative care can be provided at any point in the child’s illness.

    Hospice care begins when a child has a life expectancy of six months or less and has discontinued aggressive curative treatment. Care focuses on preparing the child and their family for death and supporting their needs through the final stages of life.

  • Who is eligible to participate in this program?

    Children from birth to age 21 with life-limiting and life-threatening conditions can be referred to Community PedsCare® after referral by their physician, health professional, clergy, parent/family member or legal guardian. To refer a child, or if you or someone you know would like more information about the Community PedsCare® program, please contact 904.407.6505 or email CommunityPedsCare@CommunityHospice.com.

  • Who pays for Community PedsCare program services?

    Medicaid or private insurance will often cover hospice care and some palliative services. However, children are never denied access because of inability to pay.

    Charitable gifts to Community Hospice & Palliative Care Foundation? provide vital funding for this care. The generosity of the local community and Community Hospice & Palliative Care enable Community PedsCare® to provide seamless care from the outpatient to inpatient setting when and where families need it most.

The Team

Community PedsCare walks alongside parents and their children regardless of the treatment options they decide to pursue. A team of trained, experienced pediatric professionals all work together, along with the child’s own physician, to support the child and family during difficult times.
  • Who is on the team?

    Who is on the team?

    • Child and family members, including siblings, caregivers and other loved ones
    • Child’s own physician
    • Pediatric nurses
    • Family-focused pediatric psychosocial specialists
    • Chaplain
    • Child life specialist
    • Pediatric supportive care physicians

     

  • Community PedsCare Physicians

    Community PedsCare Physicians

    Jeffrey Goldhagen, MD, MPH
    Program Medical Director, Community PedsCare
    Professor and Chief, Division of Community Pediatrics, UF College of Medicine-Jacksonville

    Anne Elliott, MD
    Associate Medical Director, Community PedsCare

    Amanda Spence, ARNP

Other Services & Resources

Here are some services and resources available for Community PedsCare patients and their families.

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Get to Know Us

Community Hospice & Palliative Care is here for you, committed to helping you live better with advanced illness. Please click here to contact us or call 904.268.5200 or 800.274.6614 toll-free.

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