Community PedsCare is one of just a few community pediatric programs in the country offering both palliative and hospice care. It is a program of Community Hospice & Palliative Care in collaboration with Wolfson Children’s Hospital, Nemours Children’s Specialty Care and the University of Florida – Jacksonville. Working closely with the family and the child’s primary care providers, Community PedsCare offers clinical, social service, spiritual, child life, medical and volunteer support to improve quality of life.
Community PedsCare brings comfort and care to enhance quality of life for patients from prenatal (before birth) to age 21. The program supports the specialized needs and medical care of the child, their parents and siblings, other family members, caregivers, classmates and teachers.
Counseling and spiritual support help parents and siblings deal with the strain, facilitate legacy-building and can help parents to secure resources.
With our unique combination of expressive care therapies including music and pet therapy, as well as the intervention of a dedicated child life specialist, our total family-centered care allows us to embrace and focus on the special needs of each child.
The nurses, nurse practitioner and pediatrician act as a bridge with the medical community, coordinating with the child’s doctors and others involved in the child’s care.
Grief and bereavement counseling, parent support groups and respite care offer additional help to families.
Palliative care seeks to prevent or relieve physical and emotional distress of a serious illness, with the goal of improving quality of life while still seeking curative treatments. Palliative care can be provided at any point in the child’s illness.
Hospice care begins when a child has a life expectancy of six months or less and has discontinued aggressive curative treatment. Care focuses on preparing the child and their family for death and supporting their needs through the final stages of life.
Children from birth to age 21 with life-limiting and life-threatening conditions can be referred to Community PedsCare® after referral by their physician, health professional, clergy, parent/family member or legal guardian. To refer a child, or if you or someone you know would like more information about the Community PedsCare® program, please contact 904.407.6505 or email CommunityPedsCare@CommunityHospice.com.
Medicaid or private insurance will often cover hospice care and some palliative services. However, children are never denied access because of inability to pay.
Charitable gifts to Community Hospice & Palliative Care Foundation? provide vital funding for this care. The generosity of the local community and Community Hospice & Palliative Care enable Community PedsCare® to provide seamless care from the outpatient to inpatient setting when and where families need it most.
Jeffrey Goldhagen, MD, MPH
Program Medical Director, Community PedsCare
Professor and Chief, Division of Community Pediatrics, UF College of Medicine-Jacksonville
Anne Elliott, MD
Associate Medical Director, Community PedsCare
Amanda Spence, ARNP
Community PedsCare provides specialized palliative support services for children through a partnership between the Agency for Health Care Administration, the Florida Department of Health and Florida Hospices and Palliative Care.
PIC helps families access services, in addition to the medical services they are already receiving, through the Children's Medical Services Network.
Our perinatal program is for parents whose unborn child is diagnosed with a life-limiting condition. It assists families with a birthing plan, partners with the obstetrics and delivery team and assists in coordinating transfer home from the hospital. It also offers physical, emotional and spiritual support to allow parents and siblings to spend quality time together.
University of Florida Pediatric Pain and Palliative Clinic is a physician’s referral only clinic for children with complex conditions requiring pain management and palliative care.
A two-year grant awarded by The Sontag Foundation, Transition to Life is a program that supports youth as they transition from pediatric to adult healthcare providers and move toward independence.
Fishing for Dreams (St. Johns County)